Learning to Live with RSD in this Pain Management Free For All
The "pain clinic/doc, specialist," on average,take 50% with medicines, and different therapies, MAY drop it, it may not--CRPS injuries? IME? I work on a "hands off" manner, and I am benefiting from the hands off of a neurologist who read Edison and happens to be a humble person
If this happened to someone i knew even, i would be asking care providers: docs, etc, "What in God's name is going on here?"
I am tired most of theie garbage and some of those who said they "won't be anything left if the interference of others is not stopped.
Until then, I remain looking, but to the topic of pain management, I feel sort of compelled (to follow in other blogging) to say a few things,
One, not all CRPS patients are looking for opiates, pain medication-many for whatever reasons, personal or otherwise, refuse to take them. For some the minimal relief offered is just enough for getting by.
For others, another way must be found-their lives depending on it-and as they would say, "In keeping what they have."
When others of us who have other types of pain in addition-I now also have:]
fibromyalgia: and gain a new appreciation for what people go through-and those with both, how hard each day will now be-but more than ever-how important it is to get there.
Other peripheral neuropathies
bone & joint pain,
osteoporosis with lumbar compression fractures.
A mouth of teeth, as disgusting as it sounds, because of Nausea, vomiting, and the combination of the 2 anticonvulsants which now may have perfect control of what goes on with brains, with CRPS is nothing. How do I get by.
On prayer.
I don't think my life has ever been free of some type of pain.
Some I best deal by simply taking what medicine my doctor prescribes.
The proverbial hot bath does help-throw in some mineral oil some type of something that when soaking through the skin? Feels a bit sore at first, but eucalyptus for example-hey mix that with other things now available to some?
For others, that simply does not help and more aggressive measures have to be taken. As maybe a new direction to manage some of your pain.
But thinking through what is driving yourpain in the long run-it may mean hurting for a day or two which is an overwhelming thought--but there are tools to make use of.
And good friends to kid with you:
Or let you have your space.
Kat-I love ya, hon, love to Shea, and in the memory of :
Jennifer Shea McGee, click on that link, and pray for a special girl, and her Mom, who while Shea is at Peace and with Jesus, we don't all get there at the same time, and I hope Kat finds a way to touch her baby...
I have many memories and thoughts going through my mind, and what exactly motivates me to write this: Probably that whle I work so hard each day-as I have simply to get through the pain that we each live through; but that so long I allowed betrayal around and within the people in my life, I am so exhausted, and waves of nausea are to me worse than pain from CRPS, particularly when medicines to help are useless when unable to take in protein.
Distrubed by actions going on around me I cannot change, I wonder where I wish I could be.
The answer, I cannot tolerate the procedural form of medical, and forgive the teriminology, but out for a permanent great and not only non-existence in terms of people who are in my opinion: but to give you a cue in that when I discussed my care with the psychiatrist I had been seeing and described that it felt as if the last year at minimum, he had sort of mentally checked out: I learned a shocking reality: he was let go because of his own apathetic response, and the shape I am currently in was of no shock whatsoever to them.
My information on how he recommended several patients for medical marijuana on his way out and then further abused the what I thought was a therapeutic relationship into something else? Frankly they refused to comment but given he holds no legal authority as a physician in any current state ought to reflect that sort of care that I have been subjected to.
That when I came in for a GI appointment I already had a suspicion was going to result in disaster was quite honestly a very big disappointment: I am not only in the shape I am in a candidate for nutritional therapy, I feel that denial of such not just once, but twice by the very same provider, an accurate description by a friend was 100% on the mark: as inhumane to say the very lease.
The definition of humane, as such, is as follows-and followed by inhumane (to which I had always given it at the least? Reflective of how an animal is treated. Being a definition of sorts-we all are animals in terms of the animal kingdom: that science has stuck people at the top as sort of superior over the rest shows the total arrogance of the human race, quite frankly.
] The saving grace here is that in all honesty: good honest and decent people are a part of it? Saves the rest from their own definitions.
It further reads, that since I feel torture is not a fair way to describe people who did do their jobs, I refuse to stick them with the same labels upon which I have myself been. Do I intend to protect myself? Certainly. I will link up another blog with very brief communications from my primary providers through their portal system, my own responses, and the ones they gave. I also will record, for my own protection at the very least an audio of the treatment that they call healthcare should any happen at this point.
If I sound clinical: it is for my own protection; people like this need to be exposed but in order again of self preservation? Although I am requesting port care, although it works, it remains the vehicle that gave my CRPS the horrible teeth that I now totally lack: and the RN who from yet another care provider: treated me as such, I intend to use a nanny cam to record only her interactions and patient rights if I believe my care and well, in some way myself to be injeaporady I don't give a rip who says no: I say I have not just the right, but a responsibility to do this.
On March 5, I have an appointment at another care provider: they unfortunately believe that actual records-save the ones responsible for being in no way providing any real CRPS care-that what records to provide them with, I hope someone has any ideas
As the neurologist of 15 years, saw what I was subjected to: he has apparently absolved himself by shutting me out, refusing any further calls, or to make an appointment: based on? The information contained by a psychiatrist who for one year at least was so apathetic he upon my own checking, has worked now at not just one, but at minimum, three hospitalsto make ends meet.
One RN at one of them threw up her hands and suggested I get care at Bastyr. At present, I lack transportation with no cabulance available; which my PCP has the forms to and refuses to sign without a clinic visit I've no hope of attending with no transportation to:
. As my January rent check bounced because I spent some funds-well, most of what was in my account on um, the GI appointment that landed me where? LOOK AT THE DEFINITIONS posted: my apology on the caps. But that my own PCP remains unconcerned, and won't acknowledge anything? Look for a video too. (in addition to the playlist posted below: and on my new Facebook page: I ask for your support by adding a Like or the Causes Petition being signed listed under Human Rights. Thanks for any support . That I put up with it this long as stupid. But a belief in people I used to hold. At least of the medical profession which I publicly divorce myself
A nurse at heart: always.
What you will find, folks, is abuse by the system. Those who abuse it, I hold personally responsible. Like the 3 people who made my life hell in December and landed me in the condition I am in. Directly responsible? Certainly. But not criminally, despite Rule 91, it does not apply to them, and online behavior is legal, with no repercussions for their actions.
As an old friend's death from CRPS related cause, and combined with watching two members of a group I am in refer to my own profile as "fake" when a legal name change is the responsible reason? And given the assumptions made, the cavalier way in which we both were associated, people can check me out all they wish on Facebook.
What you will find, folks, is abuse by the system. Those who abuse it, I hold personally responsible. Like the 3 people who made my life hell in December and landed me in the condition I am in. Directly responsible? Certainly. But not criminally, despite Rule 91, it does not apply to them, and online behavior is legal, with no repercussions for their actions.
This is a direct result of each of their behavior-however seemingly related or not: but "so sick from RSD" as one claims to be.
You gotta have it first. Her own (first of many) doc doen't even believe her, and I can't blame him, but ask me for a name? Once upon a time, I may have given it: now I simply wish to survive this intact, thanks, LOL, but stupid I am not. I did save the conversations, upon which I carefully asked targeted questions, wording differently I ordinarily would have. Call it "speaking the language."
That an unrelated ARNP stated that there is a total lack of CRPS care in the region, including what is at the University of Washington (nerve blocks that crippled me, putting me first in a chair, then bedbound with few positions of tolerable comfort?
Yet can I afford to move? Nope.
I am also being forced to sign a "behavior" contract with the home health agency that if the PT/OT were not so badly needed, you each know what I would tell them.
But that I am having inhumane care (which is referenced how we treat animals: read Rule 91 below)
And imho, according the what is read on that other end, is worth a repost:
Rule 90. Torture and Cruel, Inhuman or Degrading Treatment
Rule 90. Torture, cruel or inhuman treatment and outrages upon personal dignity, in particular humiliating and degrading treatment, are prohibited.
Summary
State practice establishes this rule as a norm of customary international law applicable in both international and non-international armed conflicts.
International and non-international armed conflicts
The prohibition of torture was already recognized in the Lieber Code.[1] The Charter of the International Military Tribunal at Nuremberg included “ill-treatment” of civilians and prisoners of war as a war crime.[2] Common Article 3 of the Geneva Conventions prohibits “cruel treatment and torture” and “outrages upon personal dignity, in particular humiliating and degrading treatment” of civilians and persons hors de combat.[3] Torture and cruel treatment are also prohibited by specific provisions of the four Geneva Conventions.[4] In addition, “torture or inhuman treatment” and “wilfully causing great suffering or serious injury to body or health” constitute grave breaches of the Geneva Conventions and are war crimes under the Statute of the International Criminal Court.[5]The prohibition of torture and outrages upon personal dignity, in particular humiliating and degrading treatment, is recognized as a fundamental guarantee for civilians and persons hors de combat by Additional Protocols I and II.[6] Torture, cruel treatment and outrages upon personal dignity, in particular humiliating and degrading treatment, constitute war crimes in non-international armed conflicts under the Statutes of the International Criminal Court, of the International Criminal Tribunal for Rwanda and of the Special Court for Sierra Leone.[7]The prohibition of torture, cruel or inhuman treatment and outrages upon personal dignity is contained in numerous military manuals.[8] This prohibition is also set forth in the legislation of a large number of States.[9] It has been upheld in national case-law,[10] as well as in international case-law.[11] It is also supported by official statements and other practice.[12] The case-law of the International Criminal Tribunal for the former Yugoslavia in the Furundžija case and Kunarac case provides further evidence of the customary nature of the prohibition of torture in both international and non-international armed conflicts.[13]Allegations of torture, cruel or inhuman treatment, whether in international or non-international armed conflicts, have invariably been condemned by the UN Security Council, UN General Assembly and UN Commission on Human Rights, as well as by regional organizations and International Conferences of the Red Cross and Red Crescent.[14] Such allegations have generally been denied by the authorities concerned.[15]The prohibition of torture and cruel, inhuman or degrading treatment or punishment is to be found in general human rights treaties,[16] as well as in specific treaties that seek to prevent and punish these practices.[17] This prohibition is non-derogable under these instruments.
The term “inhuman treatment” is defined in the Elements of Crimes for the International Criminal Court as the infliction of “severe physical or mental pain or suffering”.[22] The element that distinguishes inhuman treatment from torture is the absence of the requirement that the treatment be inflicted for a specific purpose. The International Criminal Tribunal for the former Yugoslavia has used a wider definition determining that inhuman treatment is that which “causes serious mental or physical suffering or injury or constitutes a serious attack on human dignity”.[23] The element of “a serious attack on human dignity” was not included in the definition of inhuman treatment under the Elements of Crimes for the International Criminal Court because the war crime of “outrages upon personal dignity” covers such attacks.[24]
In their case-law, human rights bodies apply a definition which is similar to the one used in the Elements of Crimes for the International Criminal Court, stressing the severity of the physical or mental pain or suffering. They have found violations of the prohibition of inhuman treatment in cases of active maltreatment but also in cases of very poor conditions of detention,[25] as well as in cases of solitary confinement.[26] Lack of adequate food, water or medical treatment for detained persons has also been found to amount to inhuman treatment.[27]
Definition of outrages upon personal dignity, in particular humiliating and degrading treatment
The notion of “outrages upon personal dignity” is defined in the Elements of Crimes for the International Criminal Court as acts which humiliate, degrade or otherwise violate the dignity of a person to such a degree “as to be generally recognized as an outrage upon personal dignity”. The Elements of Crimes further specifies that degrading treatment can apply to dead persons and that the victim need not be personally aware of the humiliation.[28] The last point was made in order to cover the deliberate humiliation of unconscious or mentally handicapped persons. The Elements of Crimes adds that the cultural background of the person needs to be taken into account, thereby covering treatment that is humiliating to someone of a particular nationality or religion, for example. The notion of “degrading treatment” has been defined by the European Commission of Human Rights as treatment or punishment that “grossly humiliates the victim before others or drives the detainee to act against his/her will or conscience”.[29]
References for Rule 91
[1] Lieber Code, Article 16 (cited in Vol. II, Ch. 32, § 1010).
[2] IMT Charter (Nuremberg), Article 6(b) (ibid., § 982).
[3] Geneva Conventions, common Article 3 (ibid., § 984).
[4] First Geneva Convention, Article 12, second paragraph (“torture”) (ibid., § 985); Second Geneva Convention, Article 12, second paragraph (“torture”) (ibid., § 986); Third Geneva Convention, Article 17, fourth paragraph (“physical or mental torture”) (ibid., § 987), Article 87, third paragraph (“torture or cruelty”) (ibid., § 988) and Article 89 (“inhuman, brutal or dangerous” disciplinary punishment) (ibid., § 989); Fourth Geneva Convention, Article 32 (“torture” and “other measures of brutality”) (ibid., § 990).
[5] First Geneva Convention, Article 50 (ibid., § 991); Second Geneva Convention, Article 51 (ibid., § 991); Third Geneva Convention, Article 130 (ibid., § 991); Fourth Geneva Convention, Article 147 (ibid., § 991); ICC Statute, Article 8(2)(a)(ii) and (iii) and (c)(i) (ibid., §§ 1006–1007).
[6] Additional Protocol I, Article 75(2) (adopted by consensus) (ibid., § 996); Additional Protocol II, Article 4(2) (adopted by consensus) (ibid., § 997).
[7] ICC Statute, Article 8(2)(c)(i) and (ii) (ibid., §§ 1007–1008); ICTR Statute, Article 4(a) and (e) (ibid., § 1028); Statute of the Special Court for Sierra Leone, Article 3(a) and (e) (ibid., § 1009).
[8] See, e.g., the military manuals of Argentina (ibid., §§ 1039–1040), Australia (ibid., §§ 1041–1042), Belgium (ibid., §§ 1043–1044), Benin (ibid., § 1045), Bosnia and Herzegovina (ibid., § 1046), Burkina Faso (ibid., § 1047), Canada (ibid., §§ 1048–1049), China (ibid., § 1050), Colombia (ibid., §§ 1051–1052), Congo (ibid., § 1053), Croatia (ibid., §§ 1054–1055), Dominican Republic (ibid., § 1056), Ecuador (ibid., § 1057), El Salvador (ibid., §§ 1058–1059), France (ibid., §§ 1060–1063), Germany (ibid., § 1064), Hungary (ibid., § 1065), India (ibid., § 1066), Indonesia (ibid., §§ 1067–1068), Israel (ibid., § 1069), Italy (ibid., § 1070), Kenya (ibid., § 1071), Madagascar (ibid., § 1072), Mali (ibid., § 1073), Morocco (ibid., § 1074), Netherlands (ibid., § 1075), New Zealand (ibid., § 1076), Nicaragua (ibid., § 1077), Nigeria (ibid., §§ 1078–1079), Peru (ibid., § 1080), Philippines (ibid., §§ 1081–1082), Romania (ibid., § 1083), Russian Federation (ibid., § 1084), Senegal (ibid., §§ 1085–1086), South Africa (ibid., § 1087), Spain (ibid., § 1088), Sweden (ibid., §§ 1089–1090), Switzerland (ibid., § 1091), Togo (ibid., § 1092), Uganda (ibid., § 1093), United Kingdom (ibid., §§ 1094–1095) and United States (ibid., §§ 1096–1100).
[9] See, e.g., the legislation (ibid., §§ 1101–1215).
[10] See, e.g., Australia, Military Court at Rabaul, Baba Masaocase (ibid., § 1216); Australia, Military Court at Rabaul, Tanaka Chuichi case (ibid., § 1217); Bosnia and Herzegovina, Cantonal Court in Tuzla, Dragocase (ibid., § 1218); Canada, Court Martial Appeal Court, Brocklebankcase (ibid., § 1219); Chile, Appeal Court of Santiago, Benado Medwinsky case (ibid., § 1220); Chile, Appeal Court of Santiago, Videlacase (ibid., § 1221); China, War Crimes Military Tribunal of the Ministry of National Defenceat Nanking, Takashi Sakaicase (ibid., § 1216); Colombia, Constitutional Court, Constitutional Case No. C-225/95 (ibid., § 1222); Israel, District Court of Jerusalem, Eichmann case (ibid., § 1216); Israel, Supreme Court, Eichmann case (ibid., § 1223); Israel, High Court, General Security Service case (ibid., § 1224); Netherlands, Temporary Court-Martial at Makassar, Motomura case (ibid., § 1216) and Notomi Sueo case (ibid., § 1216); Norway, Court of Appeal, Bruns case (ibid., § 1216); United Kingdom, Military Court at Hanover, Heering case (ibid., § 1225); United States, Military Tribunalat Nuremberg, List (Hostages Trial) case (ibid., § 1216); United States, District Court of the Eastern District of New York, Filartiga case (ibid., § 1226).
[12] See, e.g., the statements of Egypt (ibid., § 1230), Netherlands (ibid., § 1233) and United States (ibid., §§ 1234–1238) and the practice of Azerbaijan (ibid., § 1228), China (ibid., § 1229), France (ibid., § 1231) and Yugoslavia (ibid., § 1241).
[14] See, e.g., UN Security Council, Res. 674 (ibid., § 1248), Res. 770 (ibid., § 1249), Res. 771 (ibid., § 1250) and Res. 1072 (ibid., § 1251); UN General Assembly, Res. 2547 (XXIV) (ibid., § 1253), Res. 3103 (XXVIII) (ibid., § 1253), Res. 3318 (XXIX) (ibid., § 1254), Res. 34/93 H (ibid., § 1253), Res. 41/35 (ibid., § 1253), Res. 50/193 (ibid., § 1255) and Res. 53/164 (ibid., § 1256); UN Commission on Human Rights, Res. 1989/67 (ibid., § 1257), Res. 1990/53 (ibid., § 1257), Res. 1991/67 (ibid., § 1258), Res. 1991/78 (ibid., § 1257), Res. 1992/60 (ibid., § 1258), Res. 1992/68 (ibid., § 1257), Res. 1994/72 (ibid., § 1259), Res. 1996/71 (ibid., § 1260) and Res. 1996/73 (ibid., § 1261); 21st International Conference of the Red Cross, Res. XI (ibid., § 1270); 23rd International Conference of the Red Cross, Res. XIV (ibid., § 1271); 24th International Conference of the Red Cross, Res. XIV (ibid., § 1272); 25th International Conference of the Red Cross, Res. X (ibid., § 1273).
[15] See, e.g., the practice reported in ICRC archive documents (ibid., §§ 1243–1244 and 1246–1247).
[16] See International Covenant on Civil and Political Rights, Article 7 (ibid., § 993); European Convention on Human Rights, Article 3 (ibid., § 992); American Convention on Human Rights, Article 5(2) (ibid., § 994); African Charter on Human and Peoples’ Rights, Article 5 (ibid., § 998); Convention on the Rights of the Child, Article 37(a) (ibid., § 1002).
[17] See Convention against Torture (ibid., § 999), Inter-American Convention to Prevent and Punish Torture (ibid., § 1000) and European Convention for the Prevention of Torture (ibid., § 1001).
[18] Elements of Crimes for the ICC, Definition of torture as a war crime (ICC Statute, Article 8(2)(a)(ii) and (c)(i)).
[19] ICTY, Delalić case, Judgement (cited in Vol. II, Ch. 32, § 1328) and Furundžijacase, Judgement (ibid., § 1329).
[21] See, e.g., ICTY, Delalić case, Judgement (ibid., §§ 1328 and 1731); European Court of Human Rights, Aydin v. Turkey (ibid., §§ 1344 and 1741); Inter-American Commission on Human Rights, Case 10.970 (Peru) (ibid., §§ 1349 and 1743).
[22] Elements of Crimes for the ICC, Definition of inhuman treatment as a war crime (ICC Statute, Article 8(2)(a)(ii)).
[23] See ICTY, Delalić case, Judgement(cited in Vol. II, Ch. 32, § 1328) and Kordić and Čerkez case, Judgement (ibid., § 1330).
[24] Knut Dörmann, Elements of War Crimes under the Rome Statute of the International Criminal Court: Sources and Commentary, Cambridge University Press, 2003, pp. 63–64.
[25] See, e.g., UN Human Rights Committee, Améndola Massiotti and Baritussio v. Uruguay (cited in Vol. II, Ch. 32, § 1334) and Deidrick v. Jamaica (ibid., § 1335); African Commission on Human and Peoples’ Rights, Civil Liberties Organisation v. Nigeria (151/96) (ibid., § 1338); European Commission of Human Rights, Greek case (ibid., § 1339).
[26] See, e.g., UN Human Rights Committee, General Comment No. 20 (Article 7 of the International Covenant on Civil and Political Rights) (ibid., § 1333), Gómez de Voituret v. Uruguay (ibid., § 1333) and Espinoza de Polay v. Peru (ibid., § 1333); European Committee for the Prevention of Torture, Second General Report (ibid., § 1346); Inter-American Court of Human Rights, Velásquez Rodríguez case (ibid., § 1347); Inter-American Court of Human Rights, Castillo Petruzzi and Others case (ibid., § 1351).
[27] UN Human Rights Committee, Essono Mika Miha v. Equatorial Guinea, Communication No. 414/1990, 8 July 1994, § 6.4; UN Human Rights Committee, Williams v. Jamaica, Communication No. 609/1995, § 6.5; European Court of Human Rights, Keenan v. United Kingdom, Judgement, 3 April 2001, § 115; African Commission on Human and Peoples’ Rights, Civil Liberties Organisation v. Nigeria, Communication No. 151/96, 15 November 1999, § 27.[28] Elements of Crimes for the ICC, Definition of outrages upon personal dignity, in particular humiliating and degrading treatment, as a war crime (ICC Statute, Article 8(2)(b)(xxi) and (c)(ii)).[29] European Commission of Human Rights, Greek case (cited in Vol. II, Ch. 32, § 1339).
Then it would indicate a problem. If the answers are that, and not excuses to continue? Also the answer to the title question: No, the honesty required of a Christian would ten not be present.
To the ones totally closed off to anything other than a traditional approach, follow the comments on this blog: note the reposts of articles, and realize that I understand as well as anyone that each group of medicines, treatments, etc for RSDS: and I believe that it ought to carry over because quite frankly I feel that many of us are becoming very well, arrogant, if we believe that we have the absolute worst of the pain that is dished out by some very punishing disorders-frankly I also fee it shows a very sad lack of understanding of the suffering of our "fellows". As a Christian: that I find more deplorable than picking a plant out of the ground, and if I smoke it: my lungs, and sometimes, a mistake for some.
Be prepared for people who do this: and who that is-will often be a shock. Those who believe any of marijauan therapy is automatically classified as abuse, no matter how careful is reflective not of what you may accomplish, but more like their own limitations in being able to or not able to use it therapeutically. A neighbor of my own has gotten into serious trouble with her own use: it reflects the level of conflict within, her own jugement of others, in much likelihood, and her own desperation to numb and not face what need be. It is the case in may who can and do put the screws to anyone who does use this effective form of therapy. I call it THC for multiple reasons-the multiple forms of it that with varying combinations have made it a "combination medication for me"
That it has been found to slow progression of many autoimmune disorders, most legal states would consider MS, (In my own state, MS is the first listed qualifying condition), and even CRPS/RSD as a primary diagnosis had me door to door in five minutes for the presription that gives access for me to the medically grown version, rather than what can be mixed, cut with anything from (though many deny the potential, saying "chemically impossible" the one time I foolishly albeit desperate to relieve pain I didn't understand: it put me in the Emergency room for nearly 22 hours and for ten I was sedated heavily and almost had to be admitted to the hospital. Bloodwork returned from an outside lab had me living in fear that trying any for again would have the same result. What was found in my system, though confidential in entirety shows that "friends" who help you "find" some "deal" is not a good place to get it: learn from it: amongst what was found in my blood was never anything I would, when leading a God-centered life, or when I was making less wise decisions-such as the one to not spend the money to get the medically grown verison-the simple fact that PCP was found is easy to say-when some people, friend or foe, you never find out until something like this "who has your back"
The server "Weedmaps" is though a good one for many states in my area, children have gained access, and less responsible dispensaries have not always been in line with what has been considered standards? As the age group of minimally required age of 18 becomes evident in the memberships to that site-though respectable in most area, the ones joining in my area have such numbers of members who are so very close to the requried age, the problem has become obvious: the pitfalls are the same. Care can be taken to minimalze them: the careful supervision of a physician is the key role.
Gastroparesis:
In most forms this can also be used to treat, or at least delay the crippling and life-altering effects of gastroparesis. This is what lies ahead. For me-but nearly 31 years of CRPS symptoms, risk factors, and so forth-combined with questions regarding autoimmune involvement in CRPS, but my um, well for now, neurologist has the feeling if autoimmune it is probably mainly a reaction to medical over-intervention-why even this procedure is risky for me:
as if this applies to us all? Hardly.
Is this treatment for all?? No, and I would recommend it strictly as a last resort. As would I recommend a thorough literature review and I mean thorough. Knowing numbers is key to whether someone succeeds or does not in this form of treatment-and an unfortunate number of people feel it is a god excuse to "get trashed," and in which case you I feel, are wasting your time: medical marijuana can still have its own set of untoward side effects and as much as you would if you started taking a phareuceutical: and the potential for beoming addicted-it is there....
This is supposed to be for whatever "qualifying condition," as would any type of prescribed pain medication.
In it's own right it is amazing to find the symptoms relieved-to keep track is one way .
For me, growing is a foolish wasteful way to go: and an expense I haven't the room for and second? The array of what is available at a dispensary for me, is much better-if I can't use the traditioal form, then I have other options-most dispensaries worth their salt wil have other ways for consumption. And yes: as a patient in my state, certain topics of discussion could lose my qualification-and some people who think that re-selling their product is a well, wise thing to do: and it perpetuates foolishness such as the comparison of myself who has suffered 31 years with chronic pain-that RSD/CRPS is strictly a "chronic pain" and well, this body is not what it once was. My gut does't work properly: but nevertheless, for example, unless things like "How can I use this money I spent on the ______ amount and make the absolute most of it, that it will work the best?"
And like any medication, it has the same pitfalls:
some grow resistant to previously helpful versions
it can be an unpredictable drug and like any other-side effects though with care, can be managed, it is also indicitive of the reasons a person goes into this therapy that also deterine the effectiveness and the personal surviveability.
Keeping notes: tape the label that should come with your prescription-and keep notes on what products (if anyone believes that any version is the same: think again. What products-a bath salt, or a keif-based ointment? Can cure an infection of yeast in some that antibiotics are useless: if done incorrectly and using the wrong amounts? Don't bother.
Not just any version of "flower" as often it is called is appropriate for any use-and therefore, going int this without the foreknowledge of what is helpful: I for example have found the names will often point me in the right direction. Further information, found at not even "any" dispensary? Needs o be present:
THC percentage
CBD count
Percentage breakdown as to how much of it is Sativa and how much of it is Indica.
That Indica's are a 100% on each time-only rarely is one to find that a "Strong" Indica will be 100% such: most for example are hybrids: but a 100% Indica does not mean no effects that could be problematic. Take the breakdowns below:
Strain A:
100% Indica
CBD: 12.4
THC: 0.9%
Sounds not too helpful? Wrong. The reasons I won't share because not everyone is serious-many abuse the laws to get "high" and using this can actually while an unpleasant stimulating effect is likely despite the 100% Indica? Well, it seems learning what each term means, does, and will help with what is pretty key:
Strain B:
20% Sativa (stimulating) an 80% Indica
CBD: .12
THC: 18%
Excellent in some people to be for anxiety, spastic relief, and pain relief rises for MOST with the increase in THC, and the combination of 80/20 can help others who can use the effect of Sativa to boost the effect of Indica-but in others? Even 20% Sativa (like myself), depending on the balance of Sativa/Indica hybrids, versus combining the CBD (Cannaboids rember root words; like steroids this can be the gentle steroid effect without things like long term effects of medications like
Strain C:
10% Sativa/90% Indica
CBD: 0.07
THC: 19% (this is normally where I draw the line at the content: much higher can have detrimental effects for some)
For pain and appetite stimulation-this was great-notably though? Muscle spasms treated by a cannabis "Icy" version (minus actual ice as well as ensuring no cayenne is in the product saved the day with respect to what the problem was.
Prednisone which is not only rough on the body in many ways: such as long term? it was the very cause of the crippling bone condition I now suffer from (as a teen, and later, young adult-even into my early 30's, I was treated so many times with steroids for varying conditions-usually the osteoarthritis, the conditions in my back, then collapsed discs, and flare-ups of RSD? It can be a big relief to "tweak numbers" for the steroid effect-but with any steroid in sensitive individuals: many can suffer badly fro the stimulating effect but the relief is immensely helpful, when those of us, forgive the term-wit nerve pain are "left in the cold" for lack of a better term. The bone condition I also suffer from (aside the osteoarthritis, EDS, secondary POTS, that also contributed to the RSD developments that I had: and frustrating? Yeah, you bet!
This courageous niece I have is one young woman's journey can serve as a reminder to many that though turned to this for relief, it can wind up a disaster: much as it did for he-one big, though not sole reason-lay with why and what relief she was looking for-added to the fact that practically since birth, around her lay only the kind that as I generally say "ought to be kept illegal and sprayed with 'weed killer' as it has ruined many lives-in the street form, as many know-and consider 'good enough' even the low-end dispensaries need to be shut down, her story while a near tragedy the presence of a spiritual transformation: saved the life of her before it was too late-and her soul. Does she understand why in me, the need is different? I think she does, but what she does not have?
The truth being told to her about the reality of my own situation. But being in a similar one that I was speaks volumes to her birthday gift: she moved. Way to go, kiddo!
Considering many take necessary prescriptions, it lies also with what the prescription is and much the same reason that you may start cannabis therapy:: I myself have been contacted by many to ask what this has done in terms of CRPS pain relief. That Regence Blue Cross of WA and ID/OR is considering coverage for eligible members of the LEGAL version, not the legalized version, should highlight the fact that with careful patient education, that many can benefit. I am reclaiming a blog I kept from the early days in therapy: many had re-posts of news articles, but also research before the therapy was began in May 2012. The answer: yes-I plan to continue-does it raise spiritual questions? I'd be worried if it did not.
Last: if they cannot cough up the numbers? Find somewhere else to go. A reputable place I found as rated #1, and taking advantage of a membership has already paid the fee for membership-made the more cost effective part of it offset. Is this a costly therapy? Without question and in many ways.
Locally a new network of dispensaries is the one and only way as I see it to continue to go:
D edicated
O n
P rotecting Patients
E verywhere.
Reliable information, and locations of reputable dispensaries with varying product lines: if one sees only select "weed" plants, but ones that look the same? Turn around and continue looking. Typically? A less expensive version can be found on he street-or it is being re-sold.
A pitfall that gives my own and only singly used dispensary a difficult time? Certainly.
Consider this:
If you don't continually question your motivations, note how you feel, and realize tht if what you take or put into your body You have a problem-is it drugs? Likely not initially. I believe if you are able to yourself, and catch it before it becomes that-it may be an interruption, but does not have to be the stopping factor. if you continue your path with never a question: on the wrong one, I feel.
Then the patient is blamed for their own condition that they did not cause, told they are on "contracts" with providers they do no longer see and the staff refuses to do any basic education for what they are into (up to their ears in alligators-and act as if I am the problem.)
Ignorance is. And it remains a choice. Treating the patient like they are causing a problem when they have done nothing.
Except?
Be put through 2 procedures: one needed to be done: a PICC line. And even the person who put it in was kinder to me than anyone else: used a double lumen as in all likelihood? Home TPN is more likely at this point until some diet an be worked in. Fine with me: start it and get me out.
I began my day at 03:00.
I have a qualifying condition in the state of my residence: I forgo what for me is more humane treatment: nerve blocks cost me nearly entirely the ability to walk: too many were done. I am sorry that even in part if the RSDSA does not agree: or fellow members: but in this area: even with an HBOT chamber that I informed them studies show have helped some. Cost is the problem.
No one has looked at the teeth. My apology for the photo-but this is more to show the total indifference towards patients in the Seattle Washington area to the patients with RSD who have suffered enough. Nutrition still has been given zero
But lead down the primrose path? Probably. My advice: get any agreement with your doc regarding meds-in writing. If not and you may search a while: so the THC is necessary: if you remain legally qualified: you cannot be accused of "illicit drug use" and though I have, I challenged them on it. Showed the prescription that though to their knowledge: I have none. So, as far as anything is concerned (like bringing it here would be stupid. I have tea and honey in my bag-that is it: the stuff settles my stomach. Fine.
But then why tell me I am more "comfortable here" when what so far has happened? Denied what does help: I have a collapsed right hip and a broken femur? Um, those meds do help that. But request denied as the reformulated version was crushed and put in applesauce-rendering it totally useless. Informed, I was told that "Oh it will work better now."
Um, ignorance IS a choice. They have better comuters than I do. But what did I have to do?
Hospital protocol through RSDSA an who? JCAHO (Joint Commission on Hospital Accreditation), and when you document everything if you must record a small detatchable webcam is advised. Get conversations on record. Don't say anything that will upset the apple cart: it simply gives them "ammunition" that you are a bahavior problem (and you are not-not ore than I am or anyone else with RSD), but never accept responsibility for someone else's chosen ignorance. Don't let ignorance be your own choice. Just get even a tablet but netbooks are better-cell companies offer them for next to nothing. Refurbish one-but in short, get the interaction on a record. Transcript it first,but if a denial of the existance: you then have proof.
My apology to anyone finding this upsetting but fact is what it is.
If you develop gastroparesis: maybe in part to the medications-but that is the nature of the beast.
My story remains true: I simply told them: "Please turn the light off." Security is unnecessary and politely request that they leave. If someone offends you with their own ignorance, indifference, or what have you, take a deep breath: but planned admissions do not have to be a disaster if you think ahead and bring a few things that help. Netflix is not going to take pain away: provide a distraction.
That its necessary in the hospital is reflective on their own ignorance. But that you are to blame-whether anyone says it directly or not: make sure you also have a knowledgeable DPOAHC who will fight for you if need be.
If that cannot be family-find someone who does love you that knows enough to call them on it.
It is simply being prepared. Cam a shot of yourself. Document your own weights, and I & O.
But that it is laughable that I was even on any contract of any kind with anyone: is laughable. Let alone a pain doctor who is the cause-exceeding the number of nerve blocks: this is all Seattle has to offer those with CRPS unless you can afford out of state care: I cannot. This is the crisis within RSD: that patients are NOT offered equal access to whichever treatment is available.
A qualifying condition prevents anyone from an accusation: but use it wisely and don't be foolish with it: it is a good way to develop a problem. I am streamlinig a former blog I kept:
It is for medical marijuana patients who wish to avoid as much opiate therapy as you possibly can.
But an x-ray even has prove what the problem is.
My port will be removed-if I go home on Home TPN? Fine. But they need to keep the hand-off approach. But when you have providers who refuse to pick up? The business office can behelpful: and will often write off additional charges when you have been treated badly. At least do not pay for money that is not earned. This hospital will see not a dime from me.
If need be? Bring your own medication if you have to. Should I be advising that? Probably not.. But reality sucks and some have to use them: wise and careful use and deveopment of other ways of coping with the pain:: is what Pain management is about.
And showing the door to arrogant jerks who will attempt to "pull rank" and treat a patient this way.
Meds, no? But prepared for documentation: yeah, now I am.
In the ED: I had to be taken from the home I live in and then? To a LOCAL ER,
get told insurance won't cover the transport I will get a bill (they will-I spoke to them-see below), just sign what
is necessary and get it over with. But in an ER: keep it shut, take your meds first-and say nothing
This was taken at 16:47pm when I arrived at the hospital ten minutes upon admission.
Suckers can keep your mouth at least from geting so unbearably dry.
They may beat you up for choices you dont care for. But really, that there is such a low standard of care for this? No excuse in my book. Regardless of where you are.
I have use ALL meds wisely-gave back what I did not care for-and then really? That they still thinkmedical grade marijuana in a for that is tolerable to my system (rather than harsh drugs with a black box warning that I cannot tolerate that I could not last April anymore than I can now.
Sometimes, our own mind, though many with any experience will find that too much solitude when keeping your mind busy is a struggle already, a daily devotional can help us each find a bit of peace we ordinarily lack for whatever reason: the closer to God each of us grows through an illness, a difficult time, it's always important that while many look to modern science the answers may not be there:
In a permanent life altering illness when often the person is left with the feelings that not everyone is terribly honest, the closer we bring ourselves to a Christ-centered relationship, the better shot our sprits have at well, if anyone is going to fight for us: it at least in my book, tends to be with God. Plain and simple.
And the more and varying devotionals, things like plans that help you keep track and read your Bible in a year, study plans that help you make notes, and note the things that can come when you read, or a study Bible, the Scolfield editionis my own favorite, and a NKGV? Awesome! It ties it together nicely: is available in both e-reader and the (to me) preferred (though my own disorganized brain prefers tabs for quick marking.
Today I pray for someone I love as we both see the inside of places we'd rather not be: but for us both,as I ted to put it "Doing what we must to stay or make ourselves well"
God Bless: and any spirituality prayer, etc? Is a great Edition or any PM program, IMHO!!!
Marijuana Legalization Bill Introduced in New Hampshire (this provides the link to the source: http://blog.norml.org/2o13...) Note from Blogspot author:This site also provides additional information for using a non-opiate, though not with no risk clearly, and recommended as a first lin deal: suffice to say? Educate yourself thoroughly FIRST; then treat it with the same respect, care, and if you find trouble: it is not for you: if you stay sick: clearly it's not. Those with addiction issues, or concerns for it: it notably has been used to avoid or even in some individuals to treat addiction...But know what the numbers mean, what to look for, etc before even applying for the state of so far: 18, that you live in before you decide that this is to replace any medications, change them, etc without medications-most of what is given-opiate or no, requires a taper schedule, and is not to be messed around with.
by Erik Altieri, NORML Communications DirectorJanuary 29, 2013
A group of five bipartisan lawmakers has introduced legislation that seeks to make New Hampshire the third state to legalize and regulate the adult use of marijuana.
The measure, House Bill 492, would legalize the possession of up to an ounce or less of marijuana and the private cultivation of a limited number of marijuana plants for adults 21 years of age and older. HB 492 would also allow for licensed and regulated marijuana retail stores, in addition to licensed facilities to cultivate, and manufacture marijuana. Full text of this measure can be read here.
Polling conducted in January of 2013 by Public Policy Polling reported that 53% of New Hampshire voters support changing state law to regulate and tax marijuana similarly to alcohol, only 37% were opposed.
Including New Hampshire, there is now a total of six states considering legislation to fully legalize marijuana. It is imperative that your elected officials hear from you in support of this measure. If you live in one of the six states (Hawaii, Maine, New Hampshire, Pennsylvania, Rhode Island, and Vermont) considering the legalization of marijuana for all adults, you can click on the appropriate link below and go directly to your state’s action alert. You can also click here to see if your state is considering any legislation pertaining to marijuana law reform.
Tell Your Elected Officials to Support Marijuana Legalization!
A group of five bipartisan lawmakers has introduced legislation that seeks to make New Hampshire the third state to legalize and regulate the adult use of marijuana.